They probably called it some kind of weird auto-immune disease and gave her steroids, which is about the worst thing anyone can do for Lyme.
I had my first case of Lyme in 1998. I was 38 at the time and thought I was just getting old and couldn't climb the trees like I used to. When the rash finally showed up, I went to the doctors, pretty sure I had Lyme. Asked him if I needed a blood test, he excused himself and brought every member of the staff into the examination room to look at me and said: "THIS IS LYME". It took me 5 years to fully recover.
I could write for hours about Lyme. the evil biological warfare on Plum island that was the genesis of this and other diseases like West Nile. the millions of misdiagnoses. the spirochetes as a cause of Alzheimer's, Parkinson's, and such.
(Exceeded character count so reduced your post)
We/she can check off most of that list.. Only rife machine that is tangible is for rent (hence the gofundme).. She is working with other "issues" which affects her bodies ability to detox, and take b vit's.
With due respect I didn't post this seeking advise, even though, from my crash course, much of what you have listed is on par.
Truth is I need to be home to care for the kids, and care for my wife. I need to run my business, and need to work to fund our house, business, kids needs, and medical costs.
We are easily 15-20K + in the hole from hard medical expenses pre-diagnosis trying to find out what the hell is wrong with her from the first 14 months of symptoms. The past 3-4 months have been huge (post diagnosis). This is well before any incidental costs, too many to list.
Now there is the cost of treatment! Much of which isn't covered by insurance.
All of my 'free' time is spent caring for the family. Then if I get an hour or so during business hours I'm on the phone with bill collectors and Liberty Health Share. We 'fell' for LHS which was great for just needing (major) medical here and there, but is impossible for anything serious. I'm spending an average of a 2 hours on the phone with them to see what the hell is going on, what the status of each and every bill is, what their ETA for payment is, blah blah... I got blown off the job today, and was on the phone for 3 1/2 hours regarding 3 bills which are about to be sent collections. (been working on her files, calls etc since 2pm) This is only 3 out of a binder full, so $2,400 for a Rife machine (which I hear works wonders for some) is out of the question for the moment.
Then comes needing to test our daughter, she has had patchy dry blotches on her skin which come and go since birth. Moodier than most her age (in my experience), unconsolable moments daily (not the normal terrible two's, but we have moments of that too). Digestive issues with same patterns as her mom. She was exposed to Lyme in utero, which it's very recent that it has been proven to pass as such in 2018. Then there is the possibility of it being a STD.
She has improved from her worst, but is far from 100%. She is getting the best care we can afford (our of pocket, then submit for reimbursement, then hours of phone calls/faxes/scanned documents/medical codes/getting providers to give us the right info/lost submitted bills/ REPEAT).
Her new doc, only takes insurance which isn't available in our county unless the employer offers it. I'm obviously self-employed so I can start offering bennies (not opposed to) however that means brining her on payroll and offering bennies to all. 3 employees (myself, wife and other) > $1500 per month plus other costs (workmans come, GL payroll going up, taxes blah blah).
I'm completely blown away about the amount the gofundme has generated in the past few days, quite a bit from people here on the Buzz whom I've never met. It truly touches me! The hard truth though is, the amount raised will only cover one bill with a little left over for different one.
We have the medical pathways down. That is why I didn't post asking for advise of what treatment is better or worse than any other. It's also why I didn't respond to this post before now.
