New Lyme desease test

#21
I haven't been on here in months otherwise I would have said something... I was bit may 2008 and pulled tick out and threw it away.. At that time I didn't know anything about it. So i went untreated for little over a year. Then every 4 weeks since the bite I got new symptoms. Start off mild with flu-like then severe by closer to the year mark. Where I couldn't talk, walk, severe joint pain, couldn't write, severe anxiety, neurological symptoms, digestive, respiratory etc. It attack me everywhere. Massive headaches for 4 years straight. Light and noise sensitivity etc.. then I got tested and it was positive. Local doctor said 3 weeks of antibiotics will be all you need.. that wasn't the case. I ended up being referred to a Lyme specialist the best in the world. Extremely expensive but after 4 years of aggressive oral treatment 26 pills a day, 2 months of shots and 2 months of iv treatment. I am symptom free but from the massive amounts of antibiotics my stomach was destroyed and had to take 5600 billion probiotics to repair my stomach. I have been good since mid 2012. It's the worst disease in my eyes, can destroy people and kill people if left untreated. Test are 99% false negative. The lyme bacteria hides behind cells so it test negative most of the time. I have been tested 21 times and only 4 times tested positive. I also had bartonella, babesia, echlichiea, and mycoplasmosis all co-infections from ticks. Bartonella is the worst and way worst then lyme itself. A specialist is the only way to get better. And diet plays a key role. Gluten causes inflammation and sugar feeds Lyme bacteria. So as long as you feed it , you will always have it.
 

Merle Nelson

Well-Known Member
#22
Great info for taking (possible Lyme contraction) seriously early on.

My wife listened to a podcast about an actor, Kris Kristophison (sp) who was being treated for Alzhiemers (sp) for some extended period of time and doing poorly. Finally a doc tested for Lyme Disease - he was misdiagnosed all along. Started proper treatment and got much better quickly.

They are thinking some percentage of Alzhiemers patients are just misdiagnosed Lymes.
 
#23
Great post arboristdean! You speak the Truth and I hope everyone here is listening. I am glad you are feeling well and hope you continue to progress. Early detection (use Igenix Lab) and knowledge are essential in treating this disease. I have been dealing with lyme and it co-infections for almost 20 years. I have continued to fall timber and climb through it all, and have had multiple reinfections. If you live and work in a risky area your first line of defense is frequent tick checks. Anybody working in the logging or arborist industry really should educate themselves about this devastating disease. Lyme is the fastest growing bacterial infection on the planet (epidemic) and must be taken very seriously. Educate yourself!!!
 

Treetopflyer

Well-Known Member
#24
Wow ..good read s .. glad y'all who've dealt are on the up N up .. stay safe out there.. I'm constantly checking for them damn buggers.. light colored clothes make it easier for myself to notice them at that point. Hopefully they don't get much past me picking them off my pants..
 

moss

Well-Known Member
#26
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rico

Well-Known Member
#28
A vacine dealing with the Borrelia bacteria would be awesome, but very rarely does one get just Lyme from a tick bite. Co-infections like Babesia (malaria like parasite), Bartonella (cat scratch disease), Rickettsia, Ehrlichia, Mycoplasm, and the multiple virus's are often times worse than the Lyme disease. These co-infection combined with a Lyme infections are a guaranteed Rocket-Ride to Hell gentlemen. Tick checks should be mandatory in our line of work. If you are bitten, always try and save the tick in a ziplock bags with a little damp tissue, and send it to a lab to be tested.
 

Stephen Moore

Well-Known Member
#29
From the Fraser- Thompson River Canyon area to here, ticks are thick through sage brush where deer trails are. There have been no documented cases of Lymes disease in this area, however tick paralysis has been found in several individuals. Apparently, if the tick is removed quickly the paralysis won’t set in? But if you wait too long, or don’t notice the tick in time you can be paralyzed! Baaad bad bad. I’ve found ticks on me a few times?!?!?
 

rico

Well-Known Member
#30
Infection from a tick bit can happen very quickly. I was re-infected by a tick that couldn't have been in my neck for more than an hour. ( gonna get a killer neck tattoo of a tick in remembrance). Once the fluid from the tick is in you, all bets are off my friends. Lyme infected ticks are an epidemics in my area and I know far to many people with the disease.
 

TimBr

Well-Known Member
#31
@rico; Just frightening. Thanks for any and all information you have on preventing the bites in the first place, and fighting the infection if the ticks manage to get to you anyway.

Tim
 

rico

Well-Known Member
#32
I am alway eager to answer any questions about Lyme disease. I have been dealing with it for a very long time, and the wife and I have learned much along to way.
Lyme has far and away been the most profound experience of my life. A relentless disease that has also brought many blessing along the way. Go figure?
 

rico

Well-Known Member
#34
Great movie that every one of us should see. I saw it with an old friend who has been in a wheelchair for 12 years from Lyme related issues. We Lyme wing-nuts have a very real connection/bond that is hard to explain, so the movie hit very close to home. I cried my ass off!
 
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pctree

Well-Known Member
#35
A coworker of mine who didn't have insurance got it. He felt like shit but kept on keeping on till customers started asking if he was drunk because he was slurring his words and walking funny. After a year of iv antibiotics he finally died.

I love America but damn we have a shit medical system.
 

Stephen Moore

Well-Known Member
#37
A coworker of mine who didn't have insurance got it. He felt like shit but kept on keeping on till customers started asking if he was drunk because he was slurring his words and walking funny. After a year of iv antibiotics he finally died.

I love America but damn we have a shit medical system.
Again no dislike button... :(
 

rico

Well-Known Member
#38
A coworker of mine who didn't have insurance got it. He felt like shit but kept on keeping on till customers started asking if he was drunk because he was slurring his words and walking funny. After a year of iv antibiotics he finally died.

I love America but damn we have a shit medical system.
A sad and tragic story PC. It sounds like the Lyme/coinfections had really hunkered down in your co-workers nervous system. Lyme is a systemic full body experience, but it is first and foremost a disease of the central nervous system. The neurological and emotional symptoms can be devastating. Gosh, maybe thats why I'm so fucking nuts?

Insurance companies and the Medical establishment have made it virtually impossible for Lyme
Literate doctors to operation in their system, so most Lyme specialists do not accept insurance. They have to operate outside of that system for fear of losing their medical license, making treatment very costly even for the insured.
 
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moss

Well-Known Member
#39
Yeah, this why the current administration’s moves to strip away pre-condition protection from the Affordable Care Act are particularly eggregious. Anyone suffering chronic illness is f’d.

I finally got Lyme 2 year ago after probably hundreds of attached deer ticks going back many years. Recovered well but it was not fun getting there. Couple years before that “Southern Tick Associated Rash Syndrome” aka STARS from a Lone Star Tick in Maryland, docs in Boston had no clue, no treatments, I recovered, flattened me for a month.

In my area eastern Mass. every deer tick does not carry pathogens so it’s roulette. For me getting them off within 12 hours has worked, the one that got me was on for longer than 24.
-AJ
 

moss

Well-Known Member
#40
Sorry about the struggles with Lyme Rico, I know a few people including climbers who’ve been doing the long-term battle, hard to even comprehend unless you’ve tasted it.
-AJ
 
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